Informed consent process for patient participation in rare disease registries linked to biorepositories

Contemp Clin Trials. 2012 Jan;33(1):5-11. doi: 10.1016/j.cct.2011.10.004. Epub 2011 Oct 24.
No abstract available

Publication types

  • Review

MeSH terms

  • Biological Specimen Banks / ethics*
  • Humans
  • Informed Consent / ethics*
  • Patient Participation / statistics & numerical data*
  • Rare Diseases*
  • Registries*
  • Tissue Donors / ethics*