A comparison of activity, participation and quality of life in children with and without spastic diplegia cerebral palsy

Disabil Rehabil. 2012;34(15):1306-10. doi: 10.3109/09638288.2011.641662. Epub 2011 Dec 26.

Abstract

Purpose: To measure activity, participation and QoL in children with CP and to determine how these differ from a comparable group of typically developing (TD) children.

Method: A total of eleven males and eight females with CP ranging in age from 5 to 12 years (mean age 7 years 10 months, SD 1 year 10 months; GMFCS level I-II) and 19 age and sex matched TD peers were recruited. Activity was measured using Paediatric Activity Card Sort (PACS), 6-Minute Walk Test and Timed Up and Go Test (TUG). Participation was measured using the assessment of Life Habits (LIFE-H) and quality of life was measured using the Cerebral Palsy Quality of Life Questionnaire (CP-QoL).

Results: TD children performed more activities of personal care than children with CP, as assessed via the PACS, t(40) = 3.266, p = 0.002. TD children participate in more life habits than children with CP across all the LIFE-H domains except that of relationships. Results from the CP-QoL indicate that TD children experience a greater QoL in the domains of functioning, t(40) = 2.824, p = 0.007, and participation and physical health, t(40) = 3.543, p = 0.001, than children with CP.

Conclusions: These findings encourage the development of therapeutic interventions that aim to reduce these imbalances at all levels of the International Classification of Functioning, Disability and Health.

Publication types

  • Comparative Study

MeSH terms

  • Case-Control Studies
  • Cerebral Palsy / complications
  • Cerebral Palsy / psychology*
  • Child, Preschool
  • Cross-Sectional Studies
  • Disability Evaluation
  • Female
  • Humans
  • Male
  • Motor Activity*
  • Quality of Life / psychology*
  • Severity of Illness Index
  • Sickness Impact Profile
  • Social Behavior*
  • Social Environment
  • Social Participation*
  • Surveys and Questionnaires

Supplementary concepts

  • Cerebral palsy, spastic, diplegic