Functional disability of children with spina bifida: its impact on parents' psychological status and family functioning

Dev Neurorehabil. 2012;15(5):322-8. doi: 10.3109/17518423.2012.691119. Epub 2012 Jun 19.

Abstract

Objective: To evaluate the impact of functional disability of Turkish children with spina bifida (SB) on parents' psychological status and family functioning.

Methods: Fifty-four children with SB and parents were included. The Functional Measure for Children (WeeFIM), Beck Depression Inventory (BDI), and Family Assessment Device (FAD) were used.

Results: Mothers' BDI scores were significantly higher than fathers' (p < 0.001). No significant effects of the knowledge of having children with SB before birth and the number of children in families on BDI scores and FAD sub-scores were found (p > 0.05). According to multiple regression analysis; significant correlations with fathers' BDI were problem-solving (p = 0.012) and general functioning (p = 0.037) and with mothers' BDI was roles (p = 0.018). Only childrens age was found to be an influential variable on WeeFIM scores (p < 0.001).

Conclusion: Spina bifida healthcare should include psychological support to parents of these children and this support should be independent from disability level of children.

MeSH terms

  • Adaptation, Psychological*
  • Adult
  • Child
  • Child, Preschool
  • Depression / psychology
  • Family Relations*
  • Female
  • Humans
  • Infant
  • Male
  • Mental Health
  • Parents / psychology*
  • Psychiatric Status Rating Scales
  • Social Support
  • Spinal Dysraphism / psychology*
  • Stress, Psychological / psychology
  • Surveys and Questionnaires
  • Turkey