The National Task Group on Intellectual Disabilities and Dementia Practices consensus recommendations for the evaluation and management of dementia in adults with intellectual disabilities

Julie A Moran; Michael S Rafii; Seth M Keller; Baldev K Singh; Matthew P Janicki; American Academy of Developmental Medicine and Dentistry; Rehabilitation Research and Training Center on Aging With Developmental Disabilities, University of Illinois at Chicago; American Association on Intellectual and Developmental Disabilities

doi:10.1016/j.mayocp.2013.04.024

The National Task Group on Intellectual Disabilities and Dementia Practices consensus recommendations for the evaluation and management of dementia in adults with intellectual disabilities

Mayo Clin Proc. 2013 Aug;88(8):831-40. doi: 10.1016/j.mayocp.2013.04.024. Epub 2013 Jul 10.

Authors

Julie A Moran¹, Michael S Rafii, Seth M Keller, Baldev K Singh, Matthew P Janicki; American Academy of Developmental Medicine and Dentistry; Rehabilitation Research and Training Center on Aging With Developmental Disabilities, University of Illinois at Chicago; American Association on Intellectual and Developmental Disabilities

Affiliation

¹ Division of Gerontology, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA. Electronic address: [email protected].

PMID: 23849993
DOI: 10.1016/j.mayocp.2013.04.024

Abstract

Adults with intellectual and developmental disabilities (I/DD) are increasingly presenting to their health care professionals with concerns related to growing older. One particularly challenging clinical question is related to the evaluation of suspected cognitive decline or dementia in older adults with I/DD, a question that most physicians feel ill-prepared to answer. The National Task Group on Intellectual Disabilities and Dementia Practices was convened to help formally address this topic, which remains largely underrepresented in the medical literature. The task group, comprising specialists who work extensively with adults with I/DD, has promulgated the following Consensus Recommendations for the Evaluation and Management of Dementia in Adults With Intellectual Disabilities as a framework for the practicing physician who seeks to approach this clinical question practically, thoughtfully, and comprehensively.

Keywords: I/DD; NTG; National Task Group on Intellectual Disabilities and Dementia Practices; intellectual and developmental disabilities.

Publication types

Practice Guideline
Research Support, Non-U.S. Gov't
Research Support, U.S. Gov't, Non-P.H.S.

MeSH terms

Adult
Age Factors
Dementia* / classification
Dementia* / diagnosis
Dementia* / epidemiology
Dementia* / etiology
Dementia* / therapy
Disability Evaluation*
Disease Management*
Humans
Intellectual Disability* / classification
Intellectual Disability* / complications
Intellectual Disability* / diagnosis
Intellectual Disability* / epidemiology
Intellectual Disability* / therapy
Persons with Mental Disabilities / rehabilitation
Persons with Mental Disabilities / statistics & numerical data
Prevalence
Risk Factors
United States / epidemiology