Psychosocial profile and lived experience of HIV-infected long-term nonprogressors: a mixed method study

J Assoc Nurses AIDS Care. 2015 Mar-Apr;26(2):164-75. doi: 10.1016/j.jana.2014.02.007. Epub 2014 Apr 20.

Abstract

The goal of this mixed method study was to describe the psychosocial profile of HIV-infected persons identified as long-term nonprogressors (LTNP), and their experiences of nonprogression. Data were collected from 24 participants with a mean age of 48 years and a mean duration of infection of 14 years. Results show rather moderate levels of anxiety and depression symptoms and a modest mean score of social support. Participants adapted by using acceptance, positive restructuring, and active coping strategies. Seven themes marked the experience: (a) reacting to announcement and dealing with diagnosis, (b) valuing interpersonal relations and well-being, (c) making changes in life, (d) coping with stress, (e) dealing with health care, (f) beliefs about reasons for nonprogression, and (g) living positively while dreading progression. The findings enrich a field of knowledge that has had little attention so far and shed light on the psychosocial profile of LTNP and their experiences of nonprogression.

Keywords: HIV-infected persons; anxiety/depression; coping; long-term nonprogressors; mixed method; psychosocial profile; social support.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Cohort Studies
  • Disease Progression
  • Female
  • HIV Long-Term Survivors / psychology*
  • Humans
  • Male
  • Middle Aged