Banking (on) the brain: from consent to authorisation and the transformative potential of solidarity

Med Law Rev. 2014 Fall;22(4):572-605. doi: 10.1093/medlaw/fwu011. Epub 2014 Apr 24.

Abstract

Modern technologies and biomedicine ambitions have given rise to new models of medical research, including population biobanking. One example of biobanking is brain banking, which refers to the collection and storage of brain and spinal cord samples for research into neurological diseases. Obviously, brain banking involves taking brains and tissue from deceased people, a fact which complicates the role of recruiters and makes consent a poor tool for stakeholders. After contextualising brain banking and considering the public health issues at stake, this article explores the legal definitions and demands of, and actual processes around, consent in England/Wales/Northern Ireland and authorisation in Scotland, articulating and evaluating their conceptual and practical differences. It then argues for an expanded but improved operation of 'authorisation' in the brain banking (and broader biobanking) setting, adopting 'solidarity' as our foundation and the improvement of the 'public good' our objective.

Keywords: Authorisation; Autonomy; Brain Banking; Consent; Human Tissue; Posthumous Donation; Solidarity.

MeSH terms

  • Biological Specimen Banks / legislation & jurisprudence*
  • Biomedical Research / ethics
  • Biomedical Research / legislation & jurisprudence*
  • Brain Diseases
  • Brain*
  • Decision Making
  • Government Regulation
  • Humans
  • Informed Consent / legislation & jurisprudence*
  • Specimen Handling / ethics
  • State Medicine
  • Third-Party Consent / legislation & jurisprudence
  • Tissue and Organ Procurement / legislation & jurisprudence*
  • United Kingdom