Patient-perceived self-management tasks and support needs of people with chronic illness: generic or disease specific?

Ann Behav Med. 2015 Apr;49(2):221-9. doi: 10.1007/s12160-014-9649-0.

Abstract

Background: Self-management is widely accepted as an essential component of chronic care. Nevertheless, little is known about patients' perceptions of self-management.

Purpose: This study aims to explore which self-management tasks and support needs people with chronic illness perceive for themselves, and to establish whether these tasks and support needs are disease specific.

Methods: A nationwide representative sample of 2,064 people with chronic disease filled in the Patient Assessment of Self-management Tasks questionnaire.

Results: Many respondents perceive self-management tasks in the daily management of their condition, although few indicate a need for support. Respondents who feel a need for support in one aspect of self-management are likely to feel a need for support in other aspects as well. Type of disease has a small effect on self-management tasks and even smaller on support needs.

Conclusion: Although the self-management tasks patients perceive may be partly disease specific, self-management support does not necessarily need to be disease specific.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Adult
  • Aged
  • Aged, 80 and over
  • Chronic Disease / psychology
  • Chronic Disease / therapy*
  • Female
  • Health Services Needs and Demand*
  • Health Surveys
  • Humans
  • Male
  • Middle Aged
  • Self Care / methods*
  • Self Concept
  • Social Support*
  • Surveys and Questionnaires
  • Young Adult