COPING IN YOUNG PEOPLE WITH CHRONIC KIDNEY DISEASE (CKD)

J Ren Care. 2016 Mar;42(1):34-42. doi: 10.1111/jorc.12131. Epub 2015 Jun 3.

Abstract

Background: Chronic kidney disease (CKD) is an irreversible disease with physiological, psychological and psychosocial challenges, especially for young people.

Objectives: The objective of this phenomenological study was to identify coping strategies in two groups of young people aged 12-18 years. In one group, the young people were healthy and in the other group, the young people had stage 4-5 CKD.

Design: Young people with CKD (stages 4-5) (n = 7) (mean age = 11.5 yrs.) and young healthy people (n = 7) (mean age = 14 yrs.) were recruited from a Children's Hospital and Youth Club respectively, and were invited to take part in one face-to-face, semi-structured interview.

Findings: Data analysis showed 11 different coping themes.

Conclusion: It can be concluded from the interviews that young healthy people and those with CKD alike, utilise a range of coping strategies. The themes derived can prompt researchers to potentially develop a coping measure for a young CKD population. However, a longitudinal study would help to recognise coping strategies young people adopt over time and provide a pathway for the development of a formal coping framework.

Keywords: Chronic kidney disease; Coping; Paediatric; Phenomenology; Young people.

MeSH terms

  • Adaptation, Psychological*
  • Adolescent
  • Child
  • Female
  • Humans
  • Male
  • Renal Insufficiency, Chronic / psychology*
  • Surveys and Questionnaires