A New Homozygous IGF1R Variant Defines a Clinically Recognizable Incomplete Dominant form of SHORT Syndrome

Hum Mutat. 2015 Nov;36(11):1043-7. doi: 10.1002/humu.22853. Epub 2015 Aug 24.

Abstract

Here, we describe a child, born from consanguineous parents, with clinical features of SHORT syndrome, high IGF1 levels, developmental delay, CNS defects, and marked progeroid appearance. By exome sequencing, we identified a new homozygous c.2201G>T missense mutation in the IGF1R gene. Proband's parents and other relatives, all heterozygous carriers of the mutation, presented with milder phenotype including high IGFI levels, short stature, and type 2 diabetes. Functional studies using patient's cell lines showed a lower IGF1R expression that leads to the alteration of IGF1R-mediated PI3K/AKT/mTOR downstream pathways, including autophagy. This study defines a clinically recognizable incomplete dominant form of SHORT syndrome, and provides relevant insights into the pathophysiological and phenotypical consequences of IGF1R mutations.

Keywords: IGF1; IGF1R; PI3K; SHORT syndrome; neonatal progeroid syndrome.

Publication types

  • Case Reports
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Consanguinity
  • Exome
  • Female
  • Genes, Dominant*
  • Growth Disorders / diagnosis*
  • Growth Disorders / genetics*
  • Heterozygote
  • High-Throughput Nucleotide Sequencing
  • Homozygote*
  • Humans
  • Hypercalcemia / diagnosis*
  • Hypercalcemia / genetics*
  • Infant
  • Male
  • Metabolic Diseases / diagnosis*
  • Metabolic Diseases / genetics*
  • Mutation*
  • Nephrocalcinosis / diagnosis*
  • Nephrocalcinosis / genetics*
  • Phenotype
  • Receptor, IGF Type 1
  • Receptors, Somatomedin / genetics*

Substances

  • IGF1R protein, human
  • Receptors, Somatomedin
  • Receptor, IGF Type 1

Supplementary concepts

  • SHORT syndrome