Palliative care in neonatal neurology: robust support for infants, families and clinicians

J Perinatol. 2016 May;36(5):331-7. doi: 10.1038/jp.2015.188. Epub 2015 Dec 10.

Abstract

Infants with neurological injury and their families face unique challenges in the neonatal intensive care unit. As specialty palliative care support becomes increasingly available, we must consider how to intentionally incorporate palliative care principles into the care of infants with neurological injury. Here, we review data regarding neonatal symptom management, prognostic uncertainty, decision making, communication and parental support for neonatal neurology patients and their families.

Publication types

  • Review

MeSH terms

  • Clinical Decision-Making / ethics
  • Humans
  • Infant, Newborn
  • Infant, Newborn, Diseases* / psychology
  • Infant, Newborn, Diseases* / therapy
  • Intensive Care Units, Neonatal / organization & administration
  • Nervous System Diseases* / psychology
  • Nervous System Diseases* / therapy
  • Neurology / methods
  • Palliative Care* / ethics
  • Palliative Care* / methods
  • Palliative Care* / psychology
  • Parents / psychology*
  • Social Support