Barriers and facilitators to research participation among adults, and parents of children with sickle cell disease: A trans-regional survey

Affiliations

• ¹ Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, Tennessee. [email protected].
• ² Department of Internal Medicine, Vanderbilt University Medical Center, Nashville, Tennessee. [email protected].
• ³ Department of Pediatrics, Vanderbilt University Medical Center, Nashville, Tennessee. [email protected].
• ⁴ Department of Hematology, St Jude Children's Research Hospital, Memphis, Tennessee.
• ⁵ Department of General Internal Medicine, University of Tennessee Health Science Center, Memphis, Tennessee.
• ⁶ Department of Pediatrics, Department of Medicine, Northwestern University, Chicago, Illinois.
• ⁷ Division of Hematology in Cancer and Blood Disease Institute, Cincinnati Children's Hospital, Cincinnati, Ohio.
• ⁸ Department of Pediatrics, Division of Hematology/Oncology, Vanderbilt-Meharry Center for Excellence in Sickle Cell Disease, Vanderbilt University Medical Center, Nashville, Tennessee.
• ⁹ Department of Medicine, Division of Hematology/Oncology, Vanderbilt-Meharry Center for Excellence in Sickle Cell Disease, Vanderbilt University Medical Center, Nashville, Tennessee.
• ¹⁰ Department of Hematology/Oncology, UCSF Benioff Children's Hospital Oakland, Oakland, California.