The Search for Pompe Patients in Canada: Assessing Feasibility of a National Disease Registry to Facilitate Research

Affiliations

• ¹ Department of Clinical Neurosciences, University of Calgary Hotchkiss Brain Institute, Calgary, Canada.
• ² Department of Pediatrics and Clinical Neurological Sciences, Western University, London, ON, Canada.
• ³ Clinical Research Unit, Montreal Neurological Institute, Montreal, QC, Canada.
• ⁴ Department of Pediatrics, Children's Hospital of Eastern Ontario Research Institute, University of Ottawa, Ottawa, ON, Canada.
• ⁵ Department of Physical Medicine and Rehabilitation, Children's Hospital of Eastern Ontario, University of Ottawa, Ottawa, ON, Canada.
• ⁶ Department of Clinical Neurological Sciences, Western University, London, ON, Canada.