Consensus clinical management guideline for pantothenate kinase-associated neurodegeneration (PKAN)

Affiliations

• ¹ Department of Molecular & Medical Genetics, Oregon Health & Science University, Portland, USA; Department of Neurology, Oregon Health & Science University, Portland, USA.
• ² Molecular Neurosciences, Developmental Neurosciences Programme, UCL Institute of Child Health, London, UK.
• ³ Department of Molecular & Medical Genetics, Oregon Health & Science University, Portland, USA.
• ⁴ Department of Physiatry, Children's Healthcare of Atlanta, GA, USA.
• ⁵ Department of Child Neurology, The Children's Memorial Health Institute, Warsaw, Poland.
• ⁶ NBIA Disorders Association, El Cajon, CA, USA.
• ⁷ Hoffunngsbaum e.V., Velbert, Germany.
• ⁸ AISNAF - Associazione Italiana Sindromi Neurodegenerative Da Accumulo Di Ferro, Rossano, Italy.
• ⁹ Science Compass, Milano, Italy.
• ¹⁰ Department of Neurology, Friedrich-Baur-Institute, Ludwig-Maximilians-University, Munich, Germany; German Center for Neurodegenerative Diseases (DZNE), Munich, Germany; Munich Cluster for Systems Neurology (SyNergy), Munich, Germany.
• ¹¹ Department of Pediatric Neuroscience, IRCCS Foundation Neurological Institute C. Besta, Milan, Italy.