Learning Experiences and Strategies of Parents of Young Children with Developmental Disabilities: Implications for Rehabilitation Professionals

Phys Occup Ther Pediatr. 2017 Oct 20;37(5):471-484. doi: 10.1080/01942638.2017.1280872. Epub 2017 Mar 15.

Abstract

Aim: To better understand the learning experiences of parents of children with developmental disabilities and the strategies they develop to support their caregiving role.

Methods: A qualitative secondary analysis of in-depth interviews with parents of children with developmental disability was conducted to better understand parents' learning experiences and the strategies they developed to use this learning in supporting their children. A foundational thematic analysis process was used to identify the main themes, and the interpretive process was influenced by adult education theories.

Results: Findings suggest that participants are highly motivated to learn by a need to understand, to do, and to belong. They also demonstrated varying levels of cognitive, affective, and psychomotor learning. Learning style preferences are evident in participants' narratives and in their self-reported learning strategies.

Conclusions: Conceptualizing parents, as adult learners, can be helpful in designing clinical interactions and education initiatives. Knowledge of adult learning principles may enable pediatric therapists to better meet the needs of parents and fulfill their information sharing responsibilities.

Keywords: Adult learning theory; early intervention; neurodevelopmental conditions; parent education; parent experiences.

MeSH terms

  • Canada
  • Child, Preschool
  • Developmental Disabilities / rehabilitation*
  • Education, Nonprofessional / methods*
  • Female
  • Health Education*
  • Humans
  • Infant
  • Male
  • Parenting
  • Parents / education
  • Physical Therapists
  • Professional-Family Relations*
  • Qualitative Research
  • Retrospective Studies