Expansion of the phenotype of Kosaki overgrowth syndrome

Am J Med Genet A. 2017 Sep;173(9):2422-2427. doi: 10.1002/ajmg.a.38310. Epub 2017 Jun 22.

Abstract

Skeletal overgrowth is a characteristic of several genetic disorders that are linked to specific molecular signaling cascades. Recently, we established a novel overgrowth syndrome (Kosaki overgrowth syndrome, OMIM #616592) arising from a de novo mutation in PDGFRB, that is, c.1751C>G p.(Pro584Arg). Subsequently, other investigators provided in vitro molecular evidence that this specific mutation in the juxtamembrane domain of PDGFRB causes an overgrowth phenotype and is the first gain-of-function point mutation of PDGFRB to be reported in humans. Here, we report the identification of a mutation in PDGFRB, c.1696T>C p.(Trp566Arg), in two unrelated patients with skeletal overgrowth, further confirming the existence of PDGFRB-related overgrowth syndrome arising from mutations in the juxtamembrane domain of PDGFRB. A review of all four of these patients with an overgrowth phenotype and PDGFRB mutations revealed postnatal skeletal overgrowth, premature aging, cognitive impairment, neurodegeneration, and a prominent connective tissue component to this complex phenotype. From a functional standpoint, hypermorphic mutations in PDGFRB lead to Kosaki overgrowth syndrome, infantile myofibromatosis (OMIM #228550), and Penttinen syndrome (OMIM #601812), whereas hypomorphic mutations lead to idiopathic basal ganglia calcification (OMIM #615007). In conclusion, a specific class of mutations in PDGFRB causes a clinically recognizable syndromic form of skeletal overgrowth.

Keywords: Kosaki overgrowth syndrome; PDGFRB; premature aging; skeletal overgrowth.

MeSH terms

  • Acro-Osteolysis / genetics*
  • Acro-Osteolysis / physiopathology
  • Basal Ganglia Diseases / genetics*
  • Basal Ganglia Diseases / physiopathology
  • Bone and Bones / physiopathology
  • Calcinosis / genetics*
  • Calcinosis / physiopathology
  • Female
  • Humans
  • Limb Deformities, Congenital / genetics*
  • Limb Deformities, Congenital / physiopathology
  • Male
  • Myofibromatosis / congenital*
  • Myofibromatosis / genetics
  • Myofibromatosis / physiopathology
  • Phenotype
  • Point Mutation
  • Progeria / genetics*
  • Progeria / physiopathology
  • Receptor, Platelet-Derived Growth Factor beta / genetics*
  • Signal Transduction / genetics

Substances

  • PDGFRB protein, human
  • Receptor, Platelet-Derived Growth Factor beta

Supplementary concepts

  • Fibromatosis, Congenital Generalized
  • Idiopathic basal ganglia calcification, childhood onset
  • Penttinen-Aula syndrome