Prevalence and characteristics of prisoners requiring end-of-life care: A prospective national survey

Palliat Med. 2018 Jan;32(1):6-16. doi: 10.1177/0269216317721816. Epub 2017 Aug 8.

Abstract

Background: Ensuring adequate end-of-life care for prisoners is a critical issue. In France, data investigating the impact of laws allowing release of seriously ill prisoners are lacking.

Aim: To assess the number and characteristics of prisoners requiring palliative care in French prisons.

Design: A prospective, national survey collecting data over a 3-month period.

Setting/participants: All healthcare units ( n = 190) providing care for prisoners in France. The prison population was 66,698 during the study period. Data collection concerned prisoners requiring end-of-life care, that is, with serious, advanced, progressive, or terminal illness and life expectancy <1 year.

Results: Estimated annual prevalence of ill prisoners requiring end-of-life care was 15.2 (confidence interval: 12.5-18.3) per 10,000 prisoners. The observed number of prisoners requiring palliative care ( n = 50) was twice as high as the expected age- and sex-standardized number based on the general population and similar to the expected number among persons 10 years older in the free community. In all, 41 of 44 (93%) of identified ill prisoners were eligible for temporary or permanent compassionate release, according to their practitioner. Only 33 of 48 (68%) of ill prisoners requested suspension or reduction in their sentence on medical grounds; half (16/33) received a positive answer.

Conclusion: The proportion of prisoners requiring palliative care is higher than expected in the general population. The general frailty and co-existing conditions of prisoners before incarceration and the acceleration of these phenomena in prison could explain this increase in end-of-life situations among prisoners.

Trial registration: ClinicalTrials.gov NCT02362295.

Keywords: Palliative care; premature aging; prevalence; prisoners; terminally ill.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • Female
  • France
  • Hospice and Palliative Care Nursing / organization & administration*
  • Hospice and Palliative Care Nursing / statistics & numerical data*
  • Humans
  • Male
  • Middle Aged
  • Palliative Care / organization & administration*
  • Palliative Care / statistics & numerical data*
  • Prevalence
  • Prisoners / statistics & numerical data*
  • Prospective Studies
  • Surveys and Questionnaires
  • Terminal Care / organization & administration*
  • Terminal Care / statistics & numerical data*
  • Terminally Ill / statistics & numerical data
  • Young Adult

Associated data

  • ClinicalTrials.gov/NCT02362295