Home is where the future is: The BrightFocus Foundation consensus panel on dementia care

Quincy M Samus; Betty Smith Black; Diane Bovenkamp; Michael Buckley; Christopher Callahan; Karen Davis; Laura N Gitlin; Nancy Hodgson; Deirdre Johnston; Helen C Kales; Michele Karel; John Jay Kenney; Shari M Ling; Maï Panchal; Melissa Reuland; Amber Willink; Constantine G Lyketsos

doi:10.1016/j.jalz.2017.10.006

Home is where the future is: The BrightFocus Foundation consensus panel on dementia care

Alzheimers Dement. 2018 Jan;14(1):104-114. doi: 10.1016/j.jalz.2017.10.006. Epub 2017 Nov 21.

Authors

Quincy M Samus¹, Betty Smith Black², Diane Bovenkamp³, Michael Buckley³, Christopher Callahan⁴, Karen Davis⁵, Laura N Gitlin⁶, Nancy Hodgson⁷, Deirdre Johnston², Helen C Kales⁸, Michele Karel⁹, John Jay Kenney¹⁰, Shari M Ling¹¹, Maï Panchal¹², Melissa Reuland², Amber Willink⁵, Constantine G Lyketsos²

Affiliations

¹ Department of Psychiatry, School of Medicine, Johns Hopkins University, Baltimore, MD, USA. Electronic address: [email protected].
² Department of Psychiatry, School of Medicine, Johns Hopkins University, Baltimore, MD, USA.
³ BrightFocus Foundation, Clarksburg, MD, USA.
⁴ Department of Medicine, Indiana University School of Medicine, Center for Aging Research, Indianapolis, IN, USA.
⁵ Department of Health Policy and Management, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD, USA.
⁶ Department of Community Public Health, Johns Hopkins University School of Nursing, Baltimore, MD, USA.
⁷ Department of Gerontology, School of Nursing, University of Pennsylvania, Philadelphia, PA, USA.
⁸ Department of Psychiatry, University of Michigan, Ann Arbor, MI, USA; Department of Veterans Affairs, HSR&D Center for Clinical Management Research, Washington, DC, USA.
⁹ Veterans Administration Central Office, Washington, DC, USA.
¹⁰ Aging & Disability Services, Montgomery Department of Health & Human Services, Rockville, MD, USA.
¹¹ Center for Clinical Standards and Quality, Centers for Medicare and Medicaid Services, Baltimore, MD, USA.
¹² Fondation Vaincre Alzheimer, Paris, France; Alzheimer Forschung Initiative, Düsseldorf, Germany; Alzheimer Nederland, Amersfoort, Amersfoort, The Netherlands.

Abstract

Introduction: A national consensus panel was convened to develop recommendations on future directions for home-based dementia care (HBDC).

Methods: The panel summarized advantages and challenges of shifting to HBDC as the nexus of care and developed consensus-based recommendations.

Results: The panel developed five core recommendations: (1) HBDC should be considered the nexus of new dementia models, from diagnosis to end of life in dementia; (2) new payment models are needed to support HBDC and reward integration of care; (3) a diverse new workforce that spans the care continuum should be prepared urgently; (4) new technologies to promote communication, monitoring/safety, and symptoms management must be tested, integrated, and deployed; and (5) targeted dissemination efforts for HBDC must be employed.

Discussion: HBDC represents a promising paradigm shift to improve care for those living with dementia and their family caregivers: these recommendations provide a framework to chart a course forward for HBDC.

Keywords: Alzheimer's and related dementias (ADRD); Care financing; Community-based care; Cost effectiveness; Dementia; Home-based care; Payment models; Technology; Workforce.

Publication types

Research Support, N.I.H., Extramural
Research Support, Non-U.S. Gov't
Review

MeSH terms

Caregivers / psychology
Caregivers / statistics & numerical data
Consensus*
Cost of Illness*
Cost-Benefit Analysis / methods
Cost-Benefit Analysis / statistics & numerical data
Dementia / diagnosis
Dementia / nursing*
Dementia / psychology*
Home Care Services*
Humans

Abstract

Publication types

MeSH terms

Grants and funding