Management of Adolescent-Parent Dyads' Discordance for Willingness to Participate in a Reproductive Health Clinical Trial

J Empir Res Hum Res Ethics. 2018 Feb;13(1):42-49. doi: 10.1177/1556264617745409. Epub 2017 Dec 10.

Abstract

The objective of this study is to understand the resolution of discordance between adolescent-parent dyads about participation in research. Adolescent (14-17 years) and parent dyads were recruited from NYC pediatric clinics to assess attitudes toward research participation. A subset of dyads participated in videotaped discussions about participation in a hypothetical study. Videos from dyads that held strongly discordant opinions about participation ( n = 30) were content-coded and analyzed using a thematic framework approach. Strategies used to resolve discordance included asserting authority, granting autonomy, or recognizing inaccurate assumptions using a variety of communication behaviors. Missed opportunities to enroll initially discordant dyads may be avoided by allowing time for adolescents and parents to elicit information, clarify a situation, or convince the other.

Keywords: adolescent; consent; decision making; discordance; dyads; parent; qualitative; reproductive health.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Adolescent Behavior
  • Adult
  • Attitude*
  • Biomedical Research*
  • Communication
  • Comprehension
  • Decision Making*
  • Dissent and Disputes
  • Female
  • Humans
  • Male
  • Middle Aged
  • New York City
  • Parent-Child Relations*
  • Parents*
  • Personal Autonomy
  • Reproductive Health*
  • Research Subjects*
  • Sexual Behavior
  • Sexually Transmitted Diseases
  • Video Recording