"Take your time, then follow your heart:" Previvors' advice for communicating about family planning after testing positive for a BRCA genetic variant

Fam Syst Health. 2017 Dec;35(4):486-497. doi: 10.1037/fsh0000312.

Abstract

Introduction: The purpose of this study was to identify previvors' strategies for communicating about family planning after testing positive for a variant of the "breast cancer gene" (BRCA).

Method: Semistructured interviews were conducted with 20 women currently in committed romantic relationships, but who had not yet completed family planning upon finding out about their BRCA mutation status.

Results: Data analysis produced three categories of participant advice given to newly diagnosed previvors. Participants advised the following: (a) the importance of engaging in two-way dialogue with their partners/spouses across the life span of the partnership, (b) seeking information on new technologies and information regarding family-planning and genetic-cancer-prevention decision-making, as well as recognizing where to go for different support needs, and (c) managing and acknowledging emotions surrounding their BRCA-related health decisions.

Discussion: Previvors who have already had family-planning and genetic-cancer-risk conversations had important advice for newly diagnosed previvors. Practical advice for starting and managing conversations with partners/spouses, family members, and friends are discussed. (PsycINFO Database Record

MeSH terms

  • Adult
  • BRCA1 Protein / analysis
  • BRCA1 Protein / blood
  • BRCA2 Protein / analysis
  • BRCA2 Protein / blood
  • Breast Neoplasms / diagnosis
  • Breast Neoplasms / psychology*
  • Communication*
  • Early Detection of Cancer / psychology
  • Family Planning Services / methods*
  • Family Planning Services / trends
  • Female
  • Genetic Predisposition to Disease / psychology*
  • Humans
  • Middle Aged
  • Qualitative Research
  • Risk Factors

Substances

  • BRCA1 Protein
  • BRCA1 protein, human
  • BRCA2 Protein
  • BRCA2 protein, human