Helping Dementia Caregivers Manage Medical Problems: Benefits of an Educational Resource

Am J Alzheimers Dis Other Demen. 2018 May;33(3):176-183. doi: 10.1177/1533317517749466. Epub 2018 Jan 5.

Abstract

Background/rationale: Family caregivers of people with dementia must attend to medical care needs of their relative, yet few available resources address comorbidities in dementia. Consequently, caregivers feel ill-equipped when medical concerns arise. In response, an educational resource-Alzheimer's Medical Advisor ( AlzMed)-was developed in 2 forms (website and book) and evaluated.

Methods: Family caregivers (143 website and 51 book) used an educational resource that provides information on medical problems, vital signs, pain, dehydration, and the healthcare system. Data were collected at baseline, 3 months, and 6 months regarding confidence in sign/symptom management, burden, depression, and anxiety.

Results: Caregivers reported significantly improved confidence and (for website users) decreased role strain. Anxiety and depression also decreased, although not significantly. Improved confidence related to a reduction in role strain and anxiety, and care recipients did not experience adverse events.

Conclusion: An educational resource focusing on care of comorbid illness may benefit caregiver outcomes.

Keywords: anxiety; caregiver burden; caregiver confidence; dementia; depression; education; health events; healthcare.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Aged
  • Alzheimer Disease / nursing*
  • Anxiety / psychology
  • Books
  • Caregivers / psychology*
  • Comorbidity*
  • Depression / psychology
  • Female
  • Health Education / methods*
  • Humans
  • Internet
  • Male
  • Middle Aged
  • Self Efficacy*
  • Stress, Psychological / prevention & control
  • Stress, Psychological / psychology