A National Research Agenda for the Transition of Youth With Autism

Pediatrics. 2018 Apr;141(Suppl 4):S355-S361. doi: 10.1542/peds.2016-4300M.

Abstract

In this article, we outline a national research agenda to improve the transition to adulthood among youth with autism. We synthesized the results from 5 interconnected sets of activities: (1) a scoping review of published autism research and research priority statements, (2) a series of key informant interviews with stakeholders, (3) a 2-day National Research Agenda meeting, (4) a modified Delphi survey of stakeholders, and (5) 2 formal reviews of published literature on autism and transition. We identified 2 overarching priorities to advance research about autism and transition: (1) increased focus on community- and systems-level factors that influence outcomes with population-level approaches to measuring outcomes and (2) greater involvement of people with autism in establishing research priorities, designing research studies, and producing study findings and recommendations. We discuss how the life course framework can guide future inquiry that addresses gaps in extant research.

Publication types

  • Research Support, Non-U.S. Gov't
  • Research Support, U.S. Gov't, P.H.S.
  • Review

MeSH terms

  • Autism Spectrum Disorder / diagnosis
  • Autism Spectrum Disorder / epidemiology
  • Autism Spectrum Disorder / therapy*
  • Congresses as Topic / trends
  • Delphi Technique
  • Health Services Research / methods
  • Health Services Research / trends*
  • Humans
  • Stakeholder Participation
  • Transition to Adult Care / trends*