A Clinical Patient Reporting Tool: Giving ADPKD Patients Back Their Data

Alison G Abraham; Laura Girardat-Rotar; Sarah Ziegler; Markus Blum; Flavia Galletti; Milo A Puhan; Andreas L Serra

doi:10.1024/1661-8157/a002946

A Clinical Patient Reporting Tool: Giving ADPKD Patients Back Their Data

Praxis (Bern 1994). 2018 Apr;107(8):425-434. doi: 10.1024/1661-8157/a002946.

Authors

Alison G Abraham^{1

2

3}, Laura Girardat-Rotar³, Sarah Ziegler³, Markus Blum⁴, Flavia Galletti⁴, Milo A Puhan³, Andreas L Serra^{3

4}

Affiliations

¹ 1 Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health, Baltimore MD, USA.
² 2 Department of Ophthalmology, Johns Hopkins School of Medicine, Baltimore MD, USA.
³ 3 Epidemiology, Biostatistics and Prevention Institute, University of Zurich.
⁴ 4 Medizinisches Kompetenzzentrum für ADPKD, Suisse ADPKD, Department of Internal Medicine and Nephrology, Hirslanden, Zurich.

PMID: 29642793
DOI: 10.1024/1661-8157/a002946

No abstract available

Keywords: Participation du patient; Patient engagement; Patientenintervention; Tolvaptan; Tolvaptan treatment; autosomal dominant polycystic kidney disease; autosomal-dominante polyzystische Nierenerkrankung; décision partagée; gemeinsame Entscheidungsfindung; polykystose rénale à caractère autosomique dominant; shared decision making; tolvaptan.

Publication types

Observational Study

MeSH terms

Access to Information*
Adult
Benzazepines / adverse effects
Benzazepines / therapeutic use*
Cohort Studies
Databases, Factual
Decision Making*
Health Literacy
Humans
Medical Records Systems, Computerized*
Middle Aged
Patient Participation*
Polycystic Kidney, Autosomal Dominant / drug therapy*
Risk Assessment
Switzerland
Tolvaptan

Substances

Benzazepines
Tolvaptan