Fifth Åland Island conference on von Willebrand disease

E Berntorp; A Ågren; L Aledort; M Blombäck; M H Cnossen; S E Croteau; M von Depka; A B Federici; A Goodeve; J Goudemand; P M Mannucci; M Mourik; P T Önundarson; F Rodeghiero; T Szántó; J Windyga

doi:10.1111/hae.13475

Fifth Åland Island conference on von Willebrand disease

Haemophilia. 2018 May:24 Suppl 4:5-19. doi: 10.1111/hae.13475.

Authors

E Berntorp¹, A Ågren², L Aledort³, M Blombäck⁴, M H Cnossen⁵, S E Croteau⁶, M von Depka⁷, A B Federici⁸, A Goodeve^{9

10}, J Goudemand¹¹, P M Mannucci¹², M Mourik¹³, P T Önundarson¹⁴, F Rodeghiero¹⁵, T Szántó¹⁶, J Windyga¹⁷

Affiliations

¹ Centre for Thrombosis and Haemostasis, Skåne University Hospital, Lund University, Malmö, Sweden.
² Coagulation Unit, Department of Medicine, Division of Haematology, Karolinska University Hospital, Stockholm, Sweden.
³ Department of Hematology and Medical Oncology, Mount Sinai Hospital, New York, NY, USA.
⁴ Department of Molecular Medicine and Surgery, Karolinska University Hospital, Stockholm, Sweden.
⁵ Erasmus University Medical Center - Sophia Children's Hospital Rotterdam, Rotterdam, The Netherlands.
⁶ Boston Children's Hospital, Boston Hemophilia Center, Harvard Medical School, Boston, MA, USA.
⁷ Werlhof-Institute Hannover, Hannover, Germany.
⁸ Department of Oncology and Oncologic Hematology, Haematology and Transfusion Medicine, L. Sacco University Hospital, University of Milan, Milan, Italy.
⁹ Haemostasis Research Group, University of Sheffield, Sheffield, UK.
¹⁰ Sheffield Diagnostic Genetics Service, Sheffield Children's NHS Foundation Trust, Sheffield, UK.
¹¹ Department of Haematology, Lille University Hospital, Lille, France.
¹² Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, IRCCS Cà Grande Maggiore Policlinico Hospital Foundation, Milan, Italy.
¹³ Department of Molecular Cell Biology, Leiden University Medical Center, Leiden, The Netherlands.
¹⁴ Landspitali University Hospital, University of Iceland School of Medicine, Reykjavik, Iceland.
¹⁵ Department of Cell Therapy and Hematology, San Bortolo Hospital, Vicenza, Italy.
¹⁶ Coagulation Disorders Unit, Departments of Hematology and Clinical Chemistry (HUSLAB Laboratory Services), Helsinki University Central Hospital, Helsinki, Finland.
¹⁷ Department of Disorders of Hemostasis and Internal Medicine, Institute of Hematology and Transfusion Medicine, Warsaw, Poland.

PMID: 29687935
DOI: 10.1111/hae.13475

Abstract

The fifth Åland Island meeting on von Willebrand disease (VWD) was held on the Åland Islands, Finland, from 22 to 24 September 2016-90 years after the first case of VWD was diagnosed in a patient from the Åland Islands in 1926. This meeting brought together experts in the field of VWD to share knowledge and expertise on current trends and challenges in VWD. Topics included the storage and release of von Willebrand factor (VWF), epidemiology and diagnostics in VWD, treatment of VWD, angiogenesis and VWF inhibitors.

Keywords: angiodysplasia; angiogenesis; genetics; surgery; von Willebrand disease; von Willebrand factor.

Publication types

Congress

MeSH terms

Humans
von Willebrand Diseases / diagnosis*
von Willebrand Diseases / epidemiology
von Willebrand Diseases / etiology
von Willebrand Diseases / therapy*