Current Approaches to Cancer Genetic Counseling Services for Spanish-Speaking Patients

J Immigr Minor Health. 2019 Apr;21(2):434-437. doi: 10.1007/s10903-018-0772-z.

Abstract

Barriers to genetic counseling services (GCS) utilization for Spanish-speaking patients (SSP) may include language barriers and limited availability of bilingual genetic counselors (GCs). The sample included GCs who: (1) practice cancer genetic counseling, (2) report a cancer practice setting, and (3) have a US mailing address. We assessed: (1) number of Spanish-speaking GCs, (2) estimated proportion of Hispanic patients, and (3) approaches used to counsel SSP. Of respondents (n = 229), 10% (n = 23) spoke Spanish. A higher proportion of GCs practicing in states with ≥ 25% Hispanics reported speaking Spanish compared to those in states with lower Hispanic populations (p = 0.02). While there was a significantly higher percentage of Spanish-speaking GCs in states with larger Hispanic populations, the absolute number was low and unlikely to meet the needs of patients. There is need to increase availability of GCS for SSPs and to understand the impact of services on patient health outcomes.

Keywords: BRCA; Breast cancer; Genetic counseling; Hereditary cancer; Spanish-speaking patients.

MeSH terms

  • Attitude to Health
  • Communication Barriers*
  • Female
  • Genetic Counseling / psychology*
  • Genetic Testing*
  • Hispanic or Latino / psychology*
  • Humans
  • Neoplasms / ethnology
  • Neoplasms / prevention & control*
  • Neoplasms / psychology
  • Patient Acceptance of Health Care / ethnology
  • Patient Acceptance of Health Care / psychology*