A membership categorization analysis of roles, activities and relationships in inclusive research conducted by co-researchers with intellectual disabilities

J Appl Res Intellect Disabil. 2019 May;32(3):719-729. doi: 10.1111/jar.12567. Epub 2019 Feb 22.

Abstract

Background: Inclusive research is studied mainly in short-term collaborations between researchers with and without intellectual disabilities focusing on practicalities. Structural study of long-term collaborations can provide insight into different roles of inclusive researchers, thereby contributing to a collective approach.

Method: Interviews with inclusive research team members (n = 3), colleagues (n = 8), and managers (n = 2) and three group discussions within the inclusive research team were held. Data were analysed following membership categorization analysis (MCA) adapted to the needs of the inclusive research team.

Results: This MCA provides insight into the complexity of inclusive research, reflected in the multitude of identified roles and activities. Analysis indicates that researchers with and without intellectual disabilities complement each other.

Conclusions: The activities identified in this study provide valuable information for discussing roles and responsibilities from the outset, so that dialogue starts at the core of inclusive research: the process between researchers with and without intellectual disabilities.

Keywords: Inclusive research; emancipatory research; intellectual disabilities; membership categorization analysis; participation; participatory research; reflection.

MeSH terms

  • Adult
  • Community-Based Participatory Research / organization & administration*
  • Female
  • Humans
  • Intellectual Disability*
  • Male
  • Persons with Intellectual Disabilities*