Consent insufficient for data release
Science
.
2019 May 3;364(6439):445-446.
doi: 10.1126/science.aax0892.
Authors
Dianne Nicol
1
,
Lisa Eckstein
2
,
Heidi Beate Bentzen
3
4
,
Pascal Borry
5
,
Mike Burgess
6
,
Wylie Burke
7
,
Don Chalmers
2
,
Mildred Cho
8
,
Edward Dove
9
,
Stephanie Fullerton
7
,
Ryuchi Ida
10
,
Kazuto Kato
11
,
Jane Kaye
12
,
Barbara Koenig
13
,
Spero Manson
14
,
Kimberlyn McGrail
6
,
Eric Meslin
15
,
Kieran O'Doherty
16
,
Barbara Prainsack
17
,
Mahsa Shabani
18
,
Holly Tabor
8
,
Adrian Thorogood
19
,
Jantina de Vries
20
Affiliations
1
Law Faculty, University of Tasmania, Hobart, Tasmania 7001, Australia.
[email protected]
.
2
Law Faculty, University of Tasmania, Hobart, Tasmania 7001, Australia.
3
Norwegian Research Center for Computers and Law, Faculty of Law, University of Oslo, 0130 Oslo, Norway.
4
Centre for Medical Ethics, Faculty of Medicine, University of Oslo, 0318 Oslo, Norway.
5
Department of Public Health and Primary Care, University of Leuven, 3000 Leuven, Belgium.
6
School of Population and Public Health, University of British Columbia, Vancouver, BC V6T 1Z3, Canada.
7
School of Medicine, University of Washington, Seattle, WA 98195, USA.
8
Centre for Biomedical Ethics, Stanford Medicine, Stanford, CA 94305, USA.
9
School of Law, University of Edinburgh, Edinburgh EH8 9YL, UK.
10
Shiga University, Shiga 522-8522, Japan.
11
Graduate School of Medicine, Osaka University, Osaka 565-0871, Japan.
12
Centre for Health, Law, and Emergent Technologies, University of Oxford, Oxford, UK.
13
School of Nursing, University of California, San Francisco, San Francisco, CA 94143, USA.
14
Colorado School of Public Health, University of Colorado, Aurora, CO 80045, USA.
15
Council of Canadian Academies, Ottawa, ON K2P 2K3, Canada.
16
Department of Psychology, University of Guelph, Guelph, ON N1G 2WY, Canada.
17
Department of Political Science, University of Vienna, 1140 Vienna, Austria.
18
Centre for Biomedical Ethics and Law, University of Leuven, 3000 Leuven, Belgium.
19
Centre of Genomics Policy, McGill University, Montreal, QC H3A 0G1, Canada.
20
Department of Medicine, University of Cape Town, Cape Town 7925, South Africa.
PMID:
31048483
DOI:
10.1126/science.aax0892
No abstract available
Publication types
Letter
Comment
MeSH terms
Confidentiality*
Genomics
Informed Consent*