"No one to consult! That is the hardest part" choice-making experiences for prenatal screening tests among Japanese women and their spouses in Austria - A qualitative interview study

Patient Educ Couns. 2019 Dec;102(12):2286-2295. doi: 10.1016/j.pec.2019.07.014. Epub 2019 Jul 22.

Abstract

Objective: Japan is the only country in the world that allows abortions due to economic reasons but illegalise them due to foetal anomaly. The objective of this study was to explore the choice-making experiences for prenatal screening among Japanese women and their spouses in Austria.

Methods: We conducted a qualitative study using semi-structured face-to-face interviews with Japanese women and their spouses in Austria. Data were analysed using thematic analysis.

Results: Twenty-five participants (14 women and 11 men) took part in the interviews. Four themes were identified: 1) Knowledge, information and memory; 2) Communication and interactions with health professionals; 3) Reasons for choice; and 4) Emotional support. Participants had limited knowledge and experienced directive counselling. Women expressed negative emotions in the choice-making processes, did not perceive husbands as a source of support and lacked a person to consult.

Conclusion: There are common characteristics among East Asian population despite different context and differences found between our Japanese participants and women in other European countries.

Practice implication: Proactive interventions aimed at increasing knowledge that help women to develop their preferences and reflect on their values could be further promoted among women of all socio-cultural backgrounds in Austria.

Keywords: Austria; Directive counselling; Informed decision; Japanese; Prenatal genetic screening.

MeSH terms

  • Asian People / ethnology
  • Asian People / psychology
  • Austria
  • Culturally Competent Care*
  • Decision Making*
  • Directive Counseling*
  • Female
  • Genetic Testing*
  • Humans
  • Informed Consent
  • Interviews as Topic
  • Japan
  • Language
  • Male
  • Pregnancy
  • Prenatal Diagnosis / psychology*
  • Qualitative Research
  • Spouses / psychology*