PlatformTM, a standards-based data custodianship platform for translational medicine research

Sci Data. 2019 Aug 13;6(1):149. doi: 10.1038/s41597-019-0156-9.

Abstract

Biomedical informatics has traditionally adopted a linear view of the informatics process (collect, store and analyse) in translational medicine (TM) studies; focusing primarily on the challenges in data integration and analysis. However, a data management challenge presents itself with the new lifecycle view of data emphasized by the recent calls for data re-use, long term data preservation, and data sharing. There is currently a lack of dedicated infrastructure focused on the 'manageability' of the data lifecycle in TM research between data collection and analysis. Current community efforts towards establishing a culture for open science prompt the creation of a data custodianship environment for management of TM data assets to support data reuse and reproducibility of research results. Here we present the development of a lifecycle-based methodology to create a metadata management framework based on community driven standards for standardisation, consolidation and integration of TM research data. Based on this framework, we also present the development of a new platform (PlatformTM) focused on managing the lifecycle for translational research data assets.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Humans
  • Information Dissemination*
  • Medical Informatics*
  • Metadata
  • Translational Research, Biomedical*
  • User-Computer Interface