Legal Challenges in Genetics, Including Duty to Warn and Genetic Discrimination

Cold Spring Harb Perspect Med. 2020 Apr 1;10(4):a036665. doi: 10.1101/cshperspect.a036665.

Abstract

This review will explore two legal issues in genetic counseling: genetic discrimination and the duty to warn. It emphasizes the complexity and variability of federal and state genetic nondiscrimination protections in the United States and how the many gaps in such protections may affect people pursuing genetic testing. The limited law addressing legal obligations genetic counselors owe at-risk relatives likely does not require counselors to warn relatives directly about genetic risks. Whether it permits them to make such disclosures, however, is more uncertain and may depend on the jurisdiction.

Publication types

  • Review

MeSH terms

  • Duty to Warn / legislation & jurisprudence*
  • Genetic Counseling / legislation & jurisprudence*
  • Genetic Privacy*
  • Genetic Research / legislation & jurisprudence
  • Genetic Testing / legislation & jurisprudence*
  • Humans
  • Public Policy
  • United States