Optimization of the transition process of youth with liver disease in adulthood: A position paper from FILFOIE, the French network for paediatric and adult rare liver diseases

Clin Res Hepatol Gastroenterol. 2020 Apr;44(2):135-141. doi: 10.1016/j.clinre.2019.07.018. Epub 2019 Sep 26.

Abstract

Transition describes a progressive and highly coordinated process encompassing the transfer of a young patient from paediatric care to the adult-care system. Transfer of medical care for an adolescent to adult services is a complex and challenging task requiring close collaboration of both the paediatric and adult-care providers. It must take into account the medical, psychosocial and educational needs of the young adult. The Transition Working Group of the French Network for Rare Liver Diseases (FILFOIE) proposes recommendations and tools designed to optimise the transition process of adolescents and young adults with chronic liver disease from child-based to adult-based healthcare services, focusing on three key time points: preparation before the transfer, the transfer process to the adult service, and finally reception and follow-up within the adult-care service.

Keywords: Adolescent; Liver disease; Liver transplantation; Transition; Young adults.

Publication types

  • Practice Guideline

MeSH terms

  • Adolescent
  • Humans
  • Liver Diseases / therapy*
  • Rare Diseases / therapy*
  • Self Report
  • Transition to Adult Care / standards*
  • Young Adult