'The hospital and everyday life are two worlds': Patients' and healthcare professionals' experiences and perspectives on collaboration in the kidney transplantation process

Charlotte Nielsen; Hanne Agerskov; Claus Bistrup; Jane Clemensen

doi:10.1002/nop2.349

'The hospital and everyday life are two worlds': Patients' and healthcare professionals' experiences and perspectives on collaboration in the kidney transplantation process

Nurs Open. 2019 Aug 10;6(4):1491-1500. doi: 10.1002/nop2.349. eCollection 2019 Oct.

Authors

Charlotte Nielsen^{1

2}, Hanne Agerskov^{1

2}, Claus Bistrup^{1

2}, Jane Clemensen^{2

3

4}

Affiliations

¹ Department of Nephrology Odense University Hospital Odense Denmark.
² Department of Clinical Research University of Southern Denmark Odense Denmark.
³ HCA Research Odense University Hospital Odense Denmark.
⁴ Centre for Innovative Medical Technology Odense University Hospital Odense Denmark.

Abstract

Aim: To explore patients' and healthcare professionals' experiences and perspectives on collaboration in the kidney transplantation process.

Design: A qualitative study with a phenomenological-hermeneutic approach.

Method: Participant observation and interviews were conducted with 18 patients, together with a focus group with eight healthcare professionals from April 2016-January 2017. The data analysis was inspired by Ricoeur's theory.

Results: While patients acknowledged that the healthcare professionals were experts, they also requested an everyday life approach to treatment and care, because both professional knowledge and everyday life experiences were needed to manage everyday life. A contrast between patients' experiences and healthcare professionals' knowledge was identified, and the empowerment approach could be a way to combine the different perspectives.

Keywords: chronic disease; kidney transplantation; nephrology nursing; patient perspectives; qualitative research.