Contact us for more information: an analysis of public enquiries about stem cells

Regen Med. 2019 Dec;14(12):1137-1150. doi: 10.2217/rme-2019-0092. Epub 2020 Jan 21.

Abstract

Aim: This study examines online enquiries received by two prominent stem cell science initiatives operating in different geographical jurisdictions. Materials & methods: Combined quantitative and qualitative analysis undertaken of internet-based queries (n = 1047) received by Stem Cells Australia and EuroStemCell from members of the public over a two-year period (May 2014-2016). Results: Findings reveal striking similarities between the two datasets and highlight the range of uncertainties, priorities and needs of those seeking information about stem cells online. Conclusion: Sustained and in-depth tailored guidance is needed to effectively meet the diverse stem cell-related information-based needs of communities internationally. Such efforts should be prioritized by regenerative medicine research initiatives and organizations, given the trust and hope diverse publics appear to place in these groups.

Keywords: SCT; information; online; patient; public enquiries; research; stem cell; stem cell treatment; support; unproven.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Humans
  • Information Dissemination / methods*
  • Information Seeking Behavior*
  • Internet / standards*
  • Public Health
  • Stem Cell Research*
  • Stem Cells*
  • Therapies, Investigational / statistics & numerical data*
  • Trust*