Exploring perceptions and use of the patient portal by young adults with type 1 diabetes: A qualitative study

Health Informatics J. 2020 Dec;26(4):2586-2596. doi: 10.1177/1460458220911780. Epub 2020 Apr 17.

Abstract

Emerging adults have been raised in the digital age and are therefore prime candidates for using a patient portal to manage chronic conditions. The limited body of research both identifies the underutilization of the patient portal and suggests increased use of the portal for the chronically ill as a tool to alleviate caregiver stress, as well as a potential modality to assist emerging adults to manage their chronic illnesses. This qualitative study was completed to obtain an understanding of emerging adults familiarity with the electronic patient portal and to elicit the perception of the usefulness of the portal to support self-management of type I diabetes. Findings provide a preliminary understanding of how a sampling of emerging adults with type I diabetes uses, perceives the benefits of, and wants to improve technology for diabetes self-management.

Keywords: ehealth; emerging adults; patient portal; self-management of type 1 diabetes; transition to adult care.

MeSH terms

  • Diabetes Mellitus, Type 1* / therapy
  • Humans
  • Patient Portals*
  • Perception
  • Qualitative Research
  • Self-Management*
  • Young Adult