Challenging misinformation and engaging patients: characterizing a regenerative medicine consult service

Regen Med. 2020 Mar;15(3):1427-1440. doi: 10.2217/rme-2020-0018. Epub 2020 Apr 22.

Abstract

Aim: To address the unmet needs of patients interested in regenerative medicine, Mayo Clinic created a Regenerative Medicine Consult Service (RMCS). We describe the service and patient satisfaction. Materials & methods: We analyzed RMCS databases through retrospective chart analysis and performed qualitative interviews with patients. Results: The average patient was older to elderly and seeking information about regenerative options for their condition. Patients reported various conditions with osteoarthritis being most common. Over a third of consults included discussions about unproven interventions. About a third of patients received a clinical or research referral. Patients reported the RMCS as useful and the consultant as knowledgeable. Conclusion: An institutional RMCS can meet patients' informational needs and support the responsible translation of regenerative medicine.

Keywords: consultation service; ethical; evidence-based medicine; information for patients; patient education; patient navigation; regenerative medicine education; responsible translation; unproven stem cell therapies.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adolescent
  • Adult
  • Aged
  • Aged, 80 and over
  • Child
  • Child, Preschool
  • Communication*
  • Evidence-Based Medicine*
  • Female
  • Humans
  • Infant
  • Interviews as Topic
  • Male
  • Middle Aged
  • Minnesota / epidemiology
  • Osteoarthritis / epidemiology
  • Osteoarthritis / therapy*
  • Patient Navigation / standards*
  • Patient Participation / statistics & numerical data*
  • Referral and Consultation / standards*
  • Regenerative Medicine*
  • Retrospective Studies
  • Young Adult