The Complex Maze of the Informed Consent Process: Helping to Improve Comprehension in Clinical Trial Participants with Alzheimer's Disease

J Alzheimers Dis Rep. 2020 May 20;4(1):161-164. doi: 10.3233/ADR-200187.

Abstract

We intend for this article to provide a foundation toward the creation of a more patient-centric approach to the informed consent process. Our overall objectives are to promote ethical clinical research standards and procedures toward enhanced supportive systems for clinical trial participants. We provide a suggested format which multidisciplinary clinical trial researchers can adapt for their own clinical trial setting.

Keywords: Autonomy; decision-making; guidance; informed consent; participant; patient-centric approach; protection; trust-building.