Influence of health care practices on the burden of caregiver mothers

Rev Bras Enferm. 2020:73 Suppl 4:e20190154. doi: 10.1590/0034-7167-2019-0154. Epub 2020 Jul 15.
[Article in Portuguese, English]

Abstract

Objectives: to explore the influence of health care practices on the burden of caregiver mothers of children with special health needs.

Methods: observational, analytical, cross-sectional, quantitative study. Participation of 100 caregiver mothers, who responded the following instruments: characterization instrument; Burden Interview for Informal Caregivers; Perceptions of Family-Centered Care - Parents version; Evaluation Instrument for Primary Care - Child Version. For statistical analysis, were used the Spearman's Correlation and univariate and multivariate linear regression analysis.

Results: the mean burden score was 47.99. There was a negative correlation between the burden and the domains of collaboration and support of the Perceptions of Family-Centered Care scale. In the multivariate linear regression model, the longitudinality variable maintained a significant relation with the burden (p = 0.023).

Conclusions: a shared, longitudinal and integrated care between families and health services can ease the burden of caregiver mothers.

Publication types

  • Observational Study

MeSH terms

  • Adult
  • Caregivers / psychology
  • Caregivers / statistics & numerical data
  • Cross-Sectional Studies
  • Delivery of Health Care / standards*
  • Delivery of Health Care / statistics & numerical data
  • Family Nursing / methods
  • Female
  • Humans
  • Male
  • Middle Aged
  • Mothers / psychology*
  • Mothers / statistics & numerical data
  • Psychometrics / instrumentation
  • Psychometrics / methods
  • Surveys and Questionnaires