The Effectiveness of Community-based Outreach Events for the Promotion of African American Research Participation

Alzheimer Dis Assoc Disord. 2020 Oct-Dec;34(4):344-349. doi: 10.1097/WAD.0000000000000404.

Abstract

Introduction: African Americans (AA) are disproportionately affected by Alzheimer's disease and related dementias yet are under-represented in clinical research. Outreach events for AA are offered to encourage research participation; however, this approach's effectiveness remains largely unexplored.

Methods: To explore the effectiveness of AA-focused versus general audience events, the authors examined attendance data over 5 years, encompassing 10 general audience events and 4 events focused on AA. For each individual, the authors searched center records for recruitment contacts and research enrollment. Summary scores for attendance at AA-focused events, general audience events, and total events were compared between those with and without research involvement.

Results: Out of 773 unique AA that attended ≥1 event, 88 became or were involved in research (11.4% engagement). AA-focused events achieved greater AA attendance than general audience events. Although research-engaged individuals were more likely to have ever attended an AA-focused event than a general audience event, attendance at AA-focused events did not statistically relate to research engagement. In contrast, attendance at events focused on the general public was related to an increased likelihood of research participation.

Discussion: These findings have important implications for designing and implementing community events to encourage AA research participation.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Aged
  • Alzheimer Disease / therapy*
  • Black or African American / psychology
  • Black or African American / statistics & numerical data*
  • Community-Institutional Relations*
  • Female
  • Humans
  • Male
  • Patient Selection*
  • Research*