Depression and Change in Caregiver Burden Among Family Members of Intensive Care Unit Survivors

Am J Crit Care. 2020 Sep 1;29(5):350-357. doi: 10.4037/ajcc2020181.

Abstract

Background: Family members of patients in intensive care units may experience psychological distress and substantial caregiver burden.

Objective: To evaluate whether change in caregiver burden from intensive care unit admission to 3-month follow-up is associated with caregiver depression at 3 months.

Methods: Caregiver burden was assessed at enrollment and 3 months later, and caregiver depression was assessed at 3 months. Depression was measured with the Hospital Anxiety and Depression Score. The primary analysis was the association between depression at 3 months and change in caregiver burden, controlling for a history of caregiver depression.

Results: One hundred one participants were enrolled; 65 participants had a surviving loved one and completed 3-month follow-up. At 3-month follow-up, 12% of participants met criteria for depression. Increased caregiver burden over time was significantly associated with depression at follow-up (Fisher exact test, P = .004), although this association was not significant after controlling for self-reported history of depression at baseline (Cochran-Mantel-Haenszel test, P = .23).

Conclusions: Family members are increasingly recognized as a vulnerable population susceptible to negative psychological outcomes after a loved one's admission to the intensive care unit. In this small sample, no significant association was found between change in caregiver burden and depression at 3 months after controlling for baseline depression.

MeSH terms

  • APACHE
  • Adaptation, Psychological
  • Adult
  • Aged
  • Caregiver Burden / epidemiology*
  • Caregivers / psychology*
  • Critical Illness
  • Depression / epidemiology*
  • Family / psychology
  • Female
  • Humans
  • Intensive Care Units*
  • Male
  • Middle Aged
  • Physical Functional Performance
  • Quality of Life
  • Socioeconomic Factors
  • Stress, Psychological / epidemiology
  • Survivors*