Practical Tools to Monitor and Evaluate Transition

Lawrence W Brown

doi:10.1016/j.spen.2020.100852

Practical Tools to Monitor and Evaluate Transition

Semin Pediatr Neurol. 2020 Dec:36:100852. doi: 10.1016/j.spen.2020.100852. Epub 2020 Oct 26.

Author

Lawrence W Brown¹

Affiliation

¹ Perelman School of Medicine of the University of Pennsylvania, Children's Hospital of Philadelphia, Philadelphia, PA. Electronic address: [email protected].

PMID: 33308520
DOI: 10.1016/j.spen.2020.100852

Abstract

The success of transition for children and youth with neurological disorders depends on leadership from the pediatric neurology team to encourage and support the patient's firm knowledge base of the medical condition, gradual acceptance of self-management skills and confident self-advocacy. While the foundations of effective medical transition have been effectively outlined, the challenge remains to translate from principles to practice. The Child Neurology Foundation has published open source, practical guides which are designed to facilitate the ability to structure and monitor the process through adolescence as well as to insure an effective transfer of care to adult providers. In addition, this article provides one hospital;'s efforts to integrate the transition process into the electronic medical record.

Publication types

Review

MeSH terms

Adolescent
Adult
Guidelines as Topic*
Humans
Nervous System Diseases / therapy*
Patient Advocacy*
Process Assessment, Health Care* / methods
Process Assessment, Health Care* / standards
Self-Management*
Transition to Adult Care* / standards
Young Adult