Health system interventions to integrate genetic testing in routine oncology services: A systematic review

PLoS One. 2021 May 19;16(5):e0250379. doi: 10.1371/journal.pone.0250379. eCollection 2021.

Abstract

Background: Integration of genetic testing into routine oncology care could improve access to testing. This systematic review investigated interventions and the tailored implementation strategies aimed at increasing access to genetic counselling and testing and identifying hereditary cancer in oncology.

Methods: The search strategy results were reported using the PRISMA statement and four electronic databases were searched. Eligible studies included routine genetic testing for breast and ovarian cancer or uptake after universal tumour screening for colorectal or endometrial cancer. The titles and abstracts were reviewed and the full text articles screened for eligibility. Data extraction was preformed using a designed template and study appraisal was assessed using an adapted Newcastle Ottawa Scale. Extracted data were mapped to Proctor's et al outcomes and the Consolidated Framework for Implementation Research and qualitatively synthesised.

Results: Twenty-seven studies, published up to May 2020, met the inclusion criteria. Twenty-five studies ranged from poor (72%), fair to good (28%) quality. Most interventions identified were complex (multiple components) such as; patient or health professional education, interdisciplinary practice and a documentation or system change. Forty-eight percent of studies with complex interventions demonstrated on average a 35% increase in access to genetic counselling and a 15% increase in testing completion. Mapping of study outcomes showed that 70% and 32% of the studies aligned with either the service and client or the implementation level outcome and 96% to the process or inner setting domains of the Consolidated Framework for Implementation Research.

Conclusion: Existing evidence suggests that complex interventions have a potentially positive effect towards genetic counselling and testing completion rates in oncology services. Studies of sound methodological quality that explore a greater breadth of pre and post implementation outcomes and informed by theory are needed. Such research could inform future service delivery models for the integration of genetics into oncology services.

Publication types

  • Research Support, Non-U.S. Gov't
  • Systematic Review

MeSH terms

  • Colorectal Neoplasms / diagnosis*
  • Colorectal Neoplasms / genetics
  • Endometrial Neoplasms / diagnosis*
  • Endometrial Neoplasms / genetics
  • Facilities and Services Utilization / trends
  • Female
  • Genetic Counseling / standards
  • Genetic Counseling / statistics & numerical data
  • Genetic Testing / standards*
  • Genetic Testing / statistics & numerical data
  • Humans
  • Implementation Science*
  • Male

Grants and funding

Research funding by a Cancer Council New South Wales PhD scholarship and a Translational Cancer Research Network Clinical PhD Scholarship Top-up award, supported by the Cancer Institute NSW supports ROS in the completion of her PhD studies in the Faculty of Medicine and Health at The University of Sydney. The funding bodies did not play a direct role in the design of the study or collection, analysis, and interpretation of data or in writing the manuscript.