Caring for a Child with Hypoplastic Left Heart Syndrome: Parent and Medical Perspective

Benjamin Nicholas; Christina Nicholas; Robin L Allen; Clifford L Cua

doi:10.1007/s40119-021-00246-2

Caring for a Child with Hypoplastic Left Heart Syndrome: Parent and Medical Perspective

Cardiol Ther. 2022 Mar;11(1):9-12. doi: 10.1007/s40119-021-00246-2. Epub 2021 Nov 26.

Authors

Benjamin Nicholas^{1

2}, Christina Nicholas^{1

2}, Robin L Allen², Clifford L Cua³

Affiliations

¹ Patient Author, Columbus, OH, USA.
² Heart Center, Nationwide Children's Hospital, Columbus, OH, USA.
³ Heart Center, Nationwide Children's Hospital, Columbus, OH, USA. [email protected].

Abstract

This article, co-authored by parents of a child with hypoplastic left heart syndrome (HLHS) and his pediatric cardiology care team, discusses the parents' experience of having a child with HLHS from diagnosis through living day-to-day with the heart condition as well as future directions.

Keywords: Congenital heart disease; Hypoplastic left heart syndrome; Parents.

Publication types

Letter