Engaging Social Justice Methods to Create Palliative Care Programs That Reflect the Cultural Values of African American Patients with Serious Illness and Their Families: A Path Towards Health Equity

J Law Med Ethics. 2021;49(2):222-230. doi: 10.1017/jme.2021.32.

Abstract

Cultural values influence how people understand illness and dying, and impact their responses to diagnosis and treatment, yet end-of-life care is rooted in white, middle class values. Faith, hope, and belief in God's healing power are central to most African Americans, yet life-preserving care is considered "aggressive" by the healthcare system, and families are pressured to cease it.

Keywords: African Americans Elders; Community Based Participatory Research; Healthcare Disparities; Palliative Care; Social Justice Methods.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Black or African American
  • Health Equity*
  • Humans
  • Palliative Care
  • Social Justice
  • Terminal Care*