ConectAR: Collaborative network of patients with asthma and carers actively involved in health research: a protocol for patient and public involvement

Eur Ann Allergy Clin Immunol. 2023 Jul;55(4):180-188. doi: 10.23822/EurAnnACI.1764-1489.249. Epub 2022 Mar 10.

Abstract

Background. Patients and Public Involvement in every stage of the patient-centered health research cycle is the key to the development of innovative solutions with an impact on patients' care. Methods. This protocol describes the development of ConectAR, a network to promote the involvement of patients with asthma and their carers in the health research cycle. Results. This protocol comprehends 4 tasks: 1) define the mission, vision, governance and activities of the network through focus groups; 2) establish the communication strategy and tools; 3) test the feasibility of the network in a Delphi study on the research priorities for asthma in Portugal; 4) coordination and dissemination activities. Conclusions. This network will improve research by ensuring that patients and carers have an active role in the co-creation of impactful solutions for asthma.

Keywords: Asthma; chronic respiratory diseases; citizen science; patient and public involvement; patient-centered health research.

MeSH terms

  • Asthma*
  • Caregivers*
  • Focus Groups
  • Humans
  • Portugal