1 Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, Pisa, Italy.
2 Spanish Association for Antiphospholipid Syndrome (SAF España), Elche, Spain.
3 Department of Rheumatology and Clinical Immunology, Charité University Medicine Berlin, Berlin, Germany.
4 Department of Internal Medicine, Hospital Pitié-Salpêtrière, Assistance Publique Hôpitaux de Paris, French National Referral Center for SLE and APS, Paris, France.
5 Auto-immune Disease Unit, Hospital de Curry Cabral, Centro Hospitalar de Lisboa Central, EPE, Lisbon, Portugal.
6 Service de rhumatologie, Hôpitaux Universitaires de Strasbourg, Centre National de Référence des Maladies Systémiques et Auto-immunes Rares Grand-Est Sud-Ouest (RESO), Strasbourg, France.
7 Department of Allergology, Rheumatology and Clinical Immunology, University Children's Hospital, University Medical Centre Ljubljana, Ljubljana, Slovenia.
8 Referral Center for Systemic Autoimmune Diseases, Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico di Milano, Milan, Italy.
9 University of Pisa, Pisa, Italy.
10 Institute of Management, Scuola Superiore Sant'Anna, Pisa, Italy.
11 Department of Rheumatology, IRCCS Policlinico San Matteo Foundation, Pavia, Italy.
12 Service de Médecine Interne, Hôpital Cochin, Centre de Référence Maladies systémiques Autoimmunes Rares d'Ile de France, Assistance Publique-Hôpitaux de Paris (AP-HP), Université de Paris, Paris, France.
13 Lupus Europe, Brussels, Belgium.
14 Rheumatology Unit, Department of Medicine, University of Padova, Padova, Italy.
15 Medical Genetics Laboratory, Molecular Medicine Department, San Camillo Forlanini Hospital, Sapienza University, Rome, Italy.
16 Department of Rheumatology, University Hospital Düsseldorf, Heinrich-Heine-University Düsseldorf, Düsseldorf, Germany.
17 Rheumatology Department, Hospital de Santa Maria, Centro Hospitalar Lisboa Norte, Lisbon Academic Medical Centre, Lisbon, Portugal.
18 Flemish Association for Hereditary Connective Tissue Disorders, Koersel, Belgium.
19 Federation of European Scleroderma Associations (FESCA), Milan, Italy.
20 Deutsche Ehlers-Danlos Initiative e.V., Furth, Germany.
21 Liga Portuguesa Contra as Doenças Reumáticas, Lisbon, Portugal.
22 Département de Médecine Interne et Immunologie Clinique, Centre de Référence des Maladies Systémiques et Auto-Immunes Rares du Nord-Ouest (CERAINO), LIRIC, INSERM, Univ. Lille, CHU Lille, Lille, France.
23 Department of Rheumatology, Cliniques Universitaires Saint-Luc, Brussels, Belgium.
24 Department of Dermatology, Universitätsklinikum, Cologne, Germany.
25 Department of Rheumatology and Clinical Immunology, University Medical Center Utrecht, Utrecht University, Utrecht, Netherlands.
26 Center for Medical Genetics, Ghent University Hospital, Ghent, Belgium.
27 Université Paris-Saclay, INSERM, CEA, Centre de recherche en Immunologie des infections virales et des maladies auto-immunes; AP-HP. Université Paris-Saclay, Hôpital Bicêtre, Rheumatology Department, Le Kremlin Bicêtre, Paris, France.
28 Clinical immunology department, Hôpitaux Universitaires de Strasbourg, Centre National de Référence des Maladies Systémiques et Auto-immunes Rares Grand-Est Sud-Ouest (RESO), Strasbourg, France.
29 Relapsing Polychondritis Awareness and Support, Worcester, UK.
30 Division of Rheumatology and Scleroderma Unit, Department of Clinical and Experimental Medicine, AOU Careggi, University of Florence, Florence, Italy.
31 Department of Rheumatology and Clinical Immunology, Kerckhoff Klinik, Justus Liebig University of Giessen, Bad Nauheim, Germany.
32 Department of Rheumatology, Emergency County Teaching Hospital, Cluj-Napoca, Romania.
33 Department of Rheumatology, Ghent University Hospital Department of Internal Medicine, Ghent, Belgium.
34 Research Laboratory and Academic Division of Clinical Rheumatology, Department of Internal Medicine, IRCCS Polyclinic Hospital San Martino, University of Genoa, Genoa, Italy.
35 National Centre for Rare Diseases, Istituto Superiore di Sanità, Rome, Italy.
36 Directorate-General for Health and Food Safety, European Commission, Brussels, Belgium.
37 Rheumatology and Clinical Immunology Unit, ASST-Spedali Civili and University of Brescia, Brescia, Italy.
38 Department of Internal Medicine and Immunology, Erasmus MC, Rotterdam, Netherlands.
39 Liga Portuguesa Contra as Doenças Reumáticas, Núcleo Síndrome de Sjögren, Lisbon, Portugal.
40 Department of Rheumatology, Leiden University Medical Center, Leiden, The Netherlands.