How my life is unique: Sibling perspectives of autism

Autism. 2023 Aug;27(6):1575-1587. doi: 10.1177/13623613221142385. Epub 2022 Dec 15.

Abstract

The impact of autism on the family is an important area of study. Much of the existing literature has focused on the parent perspective, with less emphasis on the experiences of other family members, especially non-autistic siblings. This study aimed to explore the lived experiences of a sample of nine 8- to 17-year-old non-autistic siblings of children and youth on the autism spectrum. We interviewed non-autistic siblings and analysed the written transcripts. Our results revealed the following themes: (1) Role disparities, different expectations; (2) Connection and disconnection; and (3) Our family is (extra)ordinary. Our study findings highlight siblings' unique and collective perspectives regarding their brother or sister on the spectrum within the broader family unit. We discuss the implications of these results on siblings of autistic children and youth.

Keywords: autism spectrum disorder; family; interpretative phenomenological analysis; sibling.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Autism Spectrum Disorder*
  • Autistic Disorder*
  • Child
  • Child Development Disorders, Pervasive*
  • Humans
  • Male
  • Sibling Relations
  • Siblings