Recruiting for an International Rare Disease Clinical Trial Readiness Study during the COVID-19 pandemic: Challenges and solutions
J Peripher Nerv Syst
.
2023 Sep;28(3):528-529.
doi: 10.1111/jns.12559.
Epub 2023 Jun 4.
Authors
Katy Eichinger
1
,
Steffen Behrens-Spraggins
1
,
Janet E Sowden
1
,
Davide Pareyson
2
,
Mary M Reilly
3
,
Steven S Scherer
4
,
Michael E Shy
5
,
David N Herrmann
1
;
ACT-CMT Study Group
Affiliations
1
Department of Neurology, University of Rochester, Rochester, New York, USA.
2
Department of Clinical Neurosciences, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy.
3
Centre for Neuromuscular Diseases, Department of Neuromuscular Diseases, UCL Queen Square Institute of Neurology, London, UK.
4
Department of Neurology, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, USA.
5
Department of Neurology, Carver College of Medicine, University of Iowa, Iowa City, Iowa, USA.
PMID:
37271500
DOI:
10.1111/jns.12559
No abstract available
Publication types
Letter
Research Support, N.I.H., Extramural
MeSH terms
COVID-19*
Clinical Trials as Topic*
Humans
Pandemics
Rare Diseases
Grants and funding
5U01NS109403-05/GF/NIH HHS/United States