Summary of Research: Caregiver Involvement in MS: Duty or Disruption?

Jürg Kesselring; Alexey Boyko; Alice Laroni; Trishna Bharadia; Pieter van Galen; Nektaria Alexandri

doi:10.1007/s40120-023-00483-8

Summary of Research: Caregiver Involvement in MS: Duty or Disruption?

Neurol Ther. 2023 Oct;12(5):1431-1434. doi: 10.1007/s40120-023-00483-8. Epub 2023 Jun 21.

Authors

Jürg Kesselring¹, Alexey Boyko², Alice Laroni^{3

4}, Trishna Bharadia⁵, Pieter van Galen⁶, Nektaria Alexandri⁷

Affiliations

¹ Department of Neurology and Neurorehabilitation, Kliniken Valens Rehazentrum, Valens, Switzerland. [email protected].
² Institute of Clinical Neurology and Department of Neuroimmunology of the Federal Centre of Brain Research and Neurotechnologies FMBA, Pirogov's Russian National Research Scientific Medical University, Moscow, Russia.
³ Department of Neuroscience, Rehabilitation, Ophthalmology, Genetics, Maternal and Child Health, University of Genoa, Genoa, Italy.
⁴ IRCCS Ospedale Policlinico San Martino, Genoa, Italy.
⁵ Member of the MS in the 21st Century Steering Group, Buckinghamshire, UK.
⁶ Member of the MS in the 21st Century Steering Group, Overijse, Belgium.
⁷ Merck KGaA, Darmstadt, Germany.

Abstract

This Summary of Research summarizes a previously published discussion between people with multiple sclerosis (PwMS) and their caregivers and healthcare professionals (HCPs) about how to include caregivers in consultations and decisions about multiple sclerosis (MS) care. The aim of the discussion was to help HCPs to understand differences in these relationships so they can adapt the style of consultations to support everyone.

Keywords: Caregivers; Family; Multiple sclerosis; Shared decision-making.