What makes patient involvement work? Lessons learned from a qualitative study in adolescents and young adults with cancer

Vivian W G Burgers; Annemiek Dickhout; Niels C G L Harthoorn; Simone A M M Frissen; Marloes J Noordhoek; Suzanne A Fransen; Milou J P Reuvers; Winette T A van der Graaf; Olga Husson

doi:10.1016/j.pec.2023.107881

What makes patient involvement work? Lessons learned from a qualitative study in adolescents and young adults with cancer

Patient Educ Couns. 2023 Oct:115:107881. doi: 10.1016/j.pec.2023.107881. Epub 2023 Jul 4.

Authors

Vivian W G Burgers¹, Annemiek Dickhout², Niels C G L Harthoorn³, Simone A M M Frissen³, Marloes J Noordhoek³, Suzanne A Fransen³, Milou J P Reuvers⁴, Winette T A van der Graaf⁵, Olga Husson⁶

Affiliations

¹ Department of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, Amsterdam, Netherlands; Department of Medical Oncology, Netherlands Cancer Institute, Antoni van Leeuwenhoek, Amsterdam, Netherlands; Department of Medical Oncology, Erasmus MC Cancer Institute, Erasmus University Medical Center, Rotterdam, Netherlands. Electronic address: [email protected].
² Internal Medicine, Division Medical Oncology, Maastricht University Medical Center, Maastricht, Netherlands; GROW-School of Oncology and Reproduction, Maastricht University Medical Center, Maastricht, Netherlands; Research Partner, Amsterdam, Netherlands.
³ Research Partner, Amsterdam, Netherlands.
⁴ Department of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, Amsterdam, Netherlands; Department of Medical Oncology, Netherlands Cancer Institute, Antoni van Leeuwenhoek, Amsterdam, Netherlands; Department of Medical Oncology, Erasmus MC Cancer Institute, Erasmus University Medical Center, Rotterdam, Netherlands.
⁵ Department of Medical Oncology, Netherlands Cancer Institute, Antoni van Leeuwenhoek, Amsterdam, Netherlands; Department of Medical Oncology, Erasmus MC Cancer Institute, Erasmus University Medical Center, Rotterdam, Netherlands.
⁶ Department of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, Amsterdam, Netherlands; Department of Medical Oncology, Netherlands Cancer Institute, Antoni van Leeuwenhoek, Amsterdam, Netherlands; Department of Surgical Oncology, Erasmus MC Cancer Institute, Erasmus University Medical Center, Rotterdam, Netherlands.

PMID: 37418953
DOI: 10.1016/j.pec.2023.107881

No abstract available

Keywords: Adolescents and young adults; Advanced cancer; Patient involvement; Qualitative research; Uncertain or poor cancer prognosis.

Publication types

Letter
Research Support, Non-U.S. Gov't

MeSH terms

Adolescent
Humans
Neoplasms* / therapy
Patient Participation*
Qualitative Research
Young Adult