What prevents us from reusing medical real-world data in research

Julia Gehrmann; Edit Herczog; Stefan Decker; Oya Beyan

doi:10.1038/s41597-023-02361-2

What prevents us from reusing medical real-world data in research

Sci Data. 2023 Jul 13;10(1):459. doi: 10.1038/s41597-023-02361-2.

Authors

Julia Gehrmann¹, Edit Herczog², Stefan Decker^{3

4}, Oya Beyan^{5

4}

Affiliations

¹ University of Cologne, Faculty of Medicine and University Hospital Cologne, Institute for Biomedical Informatics, Cologne, Germany. [email protected].
² Vision & Values, Brussels, Belgium.
³ Chair of Computer Science 5, RWTH Aachen University, Aachen, Germany.
⁴ Department of Data Science and Artificial Intelligence, Fraunhofer FIT, Sankt Augustin, Germany.
⁵ University of Cologne, Faculty of Medicine and University Hospital Cologne, Institute for Biomedical Informatics, Cologne, Germany.

Abstract

Medical real-world data stored in clinical systems represents a valuable knowledge source for medical research, but its usage is still challenged by various technical and cultural aspects. Analyzing these challenges and suggesting measures for future improvement are crucial to improve the situation. This comment paper represents such an analysis from the perspective of research.