Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines

Open Res Eur. 2021 Jun 16:1:69. doi: 10.12688/openreseurope.13369.1. eCollection 2021.

Abstract

Background: The coronavirus disease 2019 (COVID-19) global pandemic required a rapid and effective response. This included ethical and legally appropriate sharing of data. The European Commission (EC) called upon the Research Data Alliance (RDA) to recruit experts worldwide to quickly develop recommendations and guidelines for COVID-related data sharing. Purpose: The purpose of the present work was to explore how the RDA succeeded in engaging the participation of its community of scientists in a rapid response to the EC request. Methods: A survey questionnaire was developed and distributed among RDA COVID-19 work group members. A mixed-methods approach was used for analysis of the survey data. Results: The three constructs of radical collaboration (inclusiveness, distributed digital practices, productive and sustainable collaboration) were found to be well supported in both the quantitative and qualitative analyses of the survey data. Other social factors, such as motivation and group identity were also found to be important to the success of this extreme collaborative effort. Conclusions: Recommendations and suggestions for future work were formulated for consideration by the RDA to strengthen effective expert collaboration and interdisciplinary efforts.

Keywords: COVID-19; Research Data Alliance; data sharing; epidemic; global health; pandemic; public health; radical collaboration.

Grants and funding

This research was financially supported by the European Union’s Horizon 2020 research and innovation programme under the grant agreement No 777388 (project RDA Europe 4.0), 857645 (project NI4OS-Europe), 824087 (project EOSC-Life) and 831558 (project FAIRsFAIR). The Digital Repository of Ireland under the Royal Irish Academy has been a project partner in RDA Europe 4.0, reference co-author Timea Biro. Alexander Bernier was supported by the Canadian Cancer Genome Collaboratory. Mary O’Brien-Uhlmansiek was supported through the US National Science Foundation grant 1934649.